
Photo: Lyla empathizes with me
Well, yesterday was a difficult day. I ended up not visiting the monks at the Monastery as I realized I really needed to prepare well for the consultation with the breast surgeon later in the afternoon.
On the ride to the appointment I painted red hearts and "love" on my chest and had a nice artful bindu mark on my forehead. Sorry, didn't get a photo - will do next time.
We picked up a copy of all my records (films, reports, etc.) at the women's resource center where I had all of the prior "work" done.
At the surgeon's office we were shown into the exam room and I was requested to undress from the waist up and don a nifty exam cape. I replied to the nurse that I wanted to first meet the doctor fully clothed and then I would be happy to "cape up". I don't think she really agreed with me and I got a bit of a irritated look.
Nurse came back a bit later and took my temp., blood pressure (106/69 a little high for me ;) & pulse. The doc arrived a little while later, he kindly knocked before coming in - always a nice touch.
The consult was over 1 1/2 hrs long and we covered a lot of territory. The doc was very knowledgable and quite compassionate - two musts! He gave me a thorough physical check up including a breast check which was a little painful as my left breast is still healing from the biopsy. I have a hematoma behind the nipple where the tissue was removed and it is still tender. But the doc did try to be careful.
On examining my right breast he remarked that I had quite a few lumps (yes - I know), I mentioned that they supposedly were diagnosed as benign by the radiologist's ultrasound report. Anyway we then proceeded to pull out all the films and Ron brilliantly had brought the laptop and our set of records as they hadn't included the breast ultrasound CD in the doc's set.
He pointed out that on the mammogram film because I'm 41 and premenopausal that my breast tissue is very dense and therefore shows up as very white on the x-ray film. Suspicious areas on the film also show up white so it is pretty much impossible to get a clear view of the breast interior. The doc suggested I get a MRI of both of the breasts to help get a better read on them. Breast MRI's are sensitive and are good at showing up lots of things and so false positives can be common. I'm worried what they might find, especially on the right breast! (Please - can I at least just keep one healthy breast!!).
Okay, things get a bit blurry after this as sooooo much was talked about. Ron brought the tape recorder - so we got it all on tape. The doc gave a run down on the difference between cells -healthy and cancerous. And then went on to lots of other stuff but I'll only speak of the pertinent bits.
Even though they only found DCIS (ductal carcinoma in situ (non-invasive)) there could be invasive cancer in the breast that wasn't in the biopsy specimen. The nipple area is where all the highest collection of nerves, ducts and lymph are (the biopsy was right behind the nipple). Lymph could carry cells within the lymph system and beyond. He offered me two choices, yes, the same ones I spoke of earlier in the blog. Lumpectomy with 1cm margins (there goes my nipple), radiation and Tamoxifen or mastectomy with sentinel node biopsy.
The biggest shock for me was I had been planning in maybe having surgery a few months from now and he was thinking of surgery in terms of a few weeks! YUCK!
We had further discussion on various other stuff but I'll continue tomorrow.
I think I will go to bed now - very tired as I didn't sleep very well last night(!)
Sweet dreams ;)